“Daddy….I gotta go. Right NOWWWW!” No parent wants to hear this coming from the back seat of their car while driving down a freeway or on a rural road. But it happens. And it can happen to older kids with hypermobile Ehlers Danlos syndrome (hEDS), well past early childhood. It can happen to…… Continue reading Why Your Kid With hEDS Doesn’t Seem to Know They Need the Potty… Right Now!