Tag: EDS

Why Your Kid With hEDS Doesn’t Seem to Know They Need the Potty… Right Now!

    “Daddy….I gotta go.  Right NOWWWW!” No parent wants to hear this coming from the back seat of their car while driving down a freeway or on a rural road.  But it happens.  And it can happen to older kids with hypermobile Ehlers Danlos syndrome (hEDS), well past early childhood.  It can happen to…… Continue reading Why Your Kid With hEDS Doesn’t Seem to Know They Need the Potty… Right Now!

Finally… A Desk Chair For Your Hypermobile Kid, And it Has a Footrest!

  The SitRite chair might be for you. After sending parents to the Stokke website for years, it became clear that this chair wasn’t “all that” for every kid.  No armrests, a really hard seat, and once a child pushed away from the table or desk, they needed an adult to help them get closer…… Continue reading Finally… A Desk Chair For Your Hypermobile Kid, And it Has a Footrest!

Book Review From an OTR: Easy For You To Say Q and A’s for Teens Living with Chronic Illness or Disability

If you are a teen with JRA, Ehlers-Danlos syndrome, MD, paraplegia, or any of the many conditions that create daily challenges in your life, you need to read this book. If you are the parent of a teen or tween with these medical conditions, you REALLY need to read this book. Dr. Miriam Kaufman wrote…… Continue reading Book Review From an OTR: Easy For You To Say Q and A’s for Teens Living with Chronic Illness or Disability

Why Joint Protection Solutions for Hypermobility Aren’t Your Granny’s Joint Protection Strategies

I spent almost 10 years working in adult rehab before I transitioned to pediatrics.  I still teach joint protection, but I teach it differently to hypermobile kids and their parents.  Kids rarely have JRA, or joint damage in general.  What they have in spades are serious degrees of hypermobility.  And the methods to use joint…… Continue reading Why Joint Protection Solutions for Hypermobility Aren’t Your Granny’s Joint Protection Strategies

A Practical Guide to Helping the Hypermobile School-Age Child Succeed

  The JointSmart Child series started off in 2019 with Volume One:  The Early Years.  It is finally time for the school-age child to have their needs addressed! Volume Two:  The School Years is available now on Amazon as an e-book, filled with information to make life at home and at school easier and safer.  This…… Continue reading A Practical Guide to Helping the Hypermobile School-Age Child Succeed

Hypermobility and Music Lessons: How to Reduce the Pain of Playing

  Most kids want to learn how to play an instrument in grade school.  Most parents encourage some form of musical training for the benefits of musical training: social, coordination, attention and focus, even the suggested connection between math skills and musical ability.  Hypermobile kids can struggle with the physical demands of playing an instrument […]

Is Benign Joint Hypermobility Syndrome (BJHS) All That Benign?

  Many of the children I treat every year have some degree of hypermobility.  Some of them arrive on my caseload with diagnoses such as Prader-Willi syndrome or Down syndrome.  Their low muscle tone is understandable, and their hypermobility has been easily observable since birth.  Some of them are almost certainly going to be diagnosed…… Continue reading Is Benign Joint Hypermobility Syndrome (BJHS) All That Benign?

Picking The Best Bikes, Scooters, Etc. For Kids With Low Tone and Hypermobility

Welcome to the world of faster (and faster) movement! After mastering walking and possibly running, kids are often eager to jump on a ride-on toy and get moving.  If a child has had motor delays and has had to wait to develop the strength and balance needed to use a bike, they may be a…… Continue reading Picking The Best Bikes, Scooters, Etc. For Kids With Low Tone and Hypermobility

Hypermobility and ADHD? Take Stability, Proprioception, Pain and Fatigue Into Account Before Labeling Behavior

ADHD is a disorder that is diagnosed clinically.  This means that there are no brain examinations, no measures that are not behavioral, when determining whether or not to give a child this label.  The younger the child, the less accurate behavioral measurements are.  But the risks in quickly giving a child this label are significant.…… Continue reading Hypermobility and ADHD? Take Stability, Proprioception, Pain and Fatigue Into Account Before Labeling Behavior

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