My handout packs for pre-writing and handwriting with neurotypical kids have been a big success; lots of therapists, teachers, and parents have learned things that took me decades of professional experience and continuing education to master! NOW…it is time for children with special needs to get their own handout pack! I started with an expanded…… Continue reading Teaching Special Needs Kids How to Write? I Wrote a Handout Pack for YOU!
Tag: Ehlers Danlos Syndrome
Teens, Hypermobility, and Intimacy
I decided to write this post because there is so little out there for hypermobile teens who find being sexually active either painful or frightening. Volume III of the “JointSmart Child” series hasn’t been written yet; I have been too busy with other projects, personal and professional. Volumes I and II are available on Amazon…… Continue reading Teens, Hypermobility, and Intimacy
How Occupational Therapy Helps Kids With Complex Medical Histories Heal From PTSD
Occupational therapists have been treating children with complex medical conditions for a very long time. In acute care, in outpatient clinics, and at home. It is only recently that their unique constellation of cognitive, sensory, and social/emotional reactions have been formally recognized as PTSD. Occupational therapists can help these kids and their families in ways…… Continue reading How Occupational Therapy Helps Kids With Complex Medical Histories Heal From PTSD
Why Your Kid With hEDS Doesn’t Seem to Know They Need the Potty… Right Now!
“Daddy….I gotta go. Right NOWWWW!” No parent wants to hear this coming from the back seat of their car while driving down a freeway or on a rural road. But it happens. And it can happen to older kids with hypermobile Ehlers Danlos syndrome (hEDS), well past early childhood. It can happen to…… Continue reading Why Your Kid With hEDS Doesn’t Seem to Know They Need the Potty… Right Now!
Low Tone In The Summertime Heat? 4 Reasons To Hydrate
Here in the northeast, we are simmering all day, every day. The little ones on my caseload with low muscle tone are getting floppier and crabbier with each week at camp or daycare. We know why. The effects of heat on muscles is a big part of the problem. Bring them indoors in the A/C,…… Continue reading Low Tone In The Summertime Heat? 4 Reasons To Hydrate
Why Using a Chair Correctly is SO Difficult for Hypermobile Kids and Adults
I spend a fair amount of time teaching hypermobile people of all ages how their sitting position affects their ability to write, keyboard, or do just about anything. And of course, we want hypermobile people to have a stronger core while sitting. But their chair can help them. It is not a crutch. Yup. Use…… Continue reading Why Using a Chair Correctly is SO Difficult for Hypermobile Kids and Adults
A Fun Way to Help Kids With Low Tone Stand Up Straight: Stomp-Stomp!
Kids with hypermobility or low tone are often found standing in the most dysfunctional of positions. Toes pointing in, feet rolled in or out, feet on top of each other: take your pick, because these kids will alternate between these wobbly choices and more! Read How To Improve Posture In Children With Low Muscle Tone… Without…… Continue reading A Fun Way to Help Kids With Low Tone Stand Up Straight: Stomp-Stomp!
How To Improve Posture In Children With Low Muscle Tone… Without a Fight!
With pediatric occupational therapy going on at home using parents as surrogate therapists, it isn’t helpful to ask a parent to do too much repositioning of children with low tone. First of all, kids don’t like it. Second, kids really don’t like it. I have never met a child that enjoys therapeutic handling, no matter…… Continue reading How To Improve Posture In Children With Low Muscle Tone… Without a Fight!
A Practical Guide to Helping the Hypermobile School-Age Child Succeed
The JointSmart Child series started off in 2019 with Volume One: The Early Years. It is finally time for the school-age child to have their needs addressed! Volume Two: The School Years is available now on Amazon as an e-book, filled with information to make life at home and at school easier and safer. This…… Continue reading A Practical Guide to Helping the Hypermobile School-Age Child Succeed
Need a Desk Chair for Your Hypermobile School-Age Child? Check out the Giantex Chair
One of my colleagues with a hypermobile third-grader told me this chair has been a great chair at school for her child. It hits a lot of my targets for a good chair recommendation, so here it is: The Giantex chair. Why do I like it so much? It is a bit adaptable and it…… Continue reading Need a Desk Chair for Your Hypermobile School-Age Child? Check out the Giantex Chair
Joint Protection And Hypermobility: Investing in Your Child’s Future
Parents of hypermobile kids are taught early on not to pull on limbs while dressing them or picking them up. It is less common to teach children how to protect their own joints. In fact, parents may be encouraged by their child’s doctors to let them be “as active as they want to be,…… Continue reading Joint Protection And Hypermobility: Investing in Your Child’s Future
Hypermobility and Music Lessons: How to Reduce the Pain of Playing
Most kids want to learn how to play an instrument in grade school. Most parents encourage some form of musical training for the benefits of musical training: social, coordination, attention and focus, even the suggested connection between math skills and musical ability. Hypermobile kids can struggle with the physical demands of playing an instrument […]
Pillowfort at Target: Should You Ask Your Child’s OT Before You Click “Buy”?
There are so many families out there that need great equipment for their sensory kids. Pillowfort materials are on sale at Target, one of my favorite big box stores. The items are affordable and stylish. But are they what you really need? In order to get the products that serve your child’s needs, you may…… Continue reading Pillowfort at Target: Should You Ask Your Child’s OT Before You Click “Buy”?
Is Benign Joint Hypermobility Syndrome (BJHS) All That Benign?
Many of the children I treat every year have some degree of hypermobility. Some of them arrive on my caseload with diagnoses such as Prader-Willi syndrome or Down syndrome. Their low muscle tone is understandable, and their hypermobility has been easily observable since birth. Some of them are almost certainly going to be diagnosed…… Continue reading Is Benign Joint Hypermobility Syndrome (BJHS) All That Benign?
Could Your Pediatric Client Have a Heritable Disorder of Connective Tissue?
Therapists see lots of hypermobile kids in clinics and schools. I see hypermobile children every week in their homes for private sessions, consultations and ongoing treatment through Early Intervention. My estimate is that at least 25% of kids over 5 and almost 50% of the younger kids I have treated have some degree of…… Continue reading Could Your Pediatric Client Have a Heritable Disorder of Connective Tissue?
Have a Child With Low Tone or a Hypermobile Baby? Pay More Attention to How You Pick Your Little One Up
Carrying and holding kids is such a natural thing to do. But when your child has hypermobility due to low muscle tone, joint issues or a connective tissue disorder, how you accomplish these simple tasks makes a difference. Your actions can do more than get them from one position or location to another: they can…… Continue reading Have a Child With Low Tone or a Hypermobile Baby? Pay More Attention to How You Pick Your Little One Up
Three Ways To Reduce W-Sitting (And Why It Matters)
Children who sit on the floor with their thighs rolled inward and their calves rotated out to the sides are told that they are “W-sitting”. Parents are told to reposition their kids immediately. There are even garments like Hip Helpers that make it nearly impossible to sit in this manner. Some therapists get practically apoplectic…… Continue reading Three Ways To Reduce W-Sitting (And Why It Matters)
Picking The Best Bikes, Scooters, Etc. For Kids With Low Tone and Hypermobility
Welcome to the world of faster (and faster) movement! After mastering walking and possibly running, kids are often eager to jump on a ride-on toy and get moving. If a child has had motor delays and has had to wait to develop the strength and balance needed to use a bike, they may be a…… Continue reading Picking The Best Bikes, Scooters, Etc. For Kids With Low Tone and Hypermobility
For Kids With Hypermobility, “Listen To Your Body” Doesn’t Teach Them To Pace Themselves. Here’s What Really Helps.
I ran across a comment piece online that recommended parents teach their hypermobile children to “listen to your body” to pace activities in an effort to avoid fatigue, pain or injury. My reaction was fairly strong and immediate. The sensory-based effects of hypermobility (HM) reduce interoception (internal body awareness) and proprioception/kinesthesia (position and movement sense,…… Continue reading For Kids With Hypermobility, “Listen To Your Body” Doesn’t Teach Them To Pace Themselves. Here’s What Really Helps.
Career Planning for Teens with JRA, EDS, and Other Chronic Health Issues
It is graduation time here in the U.S. Kids (and parents) are thinking about the future. But when your teen has chronic health conditions, the future can be uncertain and the decisions more complicated. I know that the saying “Do what you love and you won’t have to work another day of your life” is…… Continue reading Career Planning for Teens with JRA, EDS, and Other Chronic Health Issues